There are over 250,000 people affected by Rare Disease in Kansas City. Over half of them are children. We asked families to answer six questions. You will find many similarities, yet many differences. We are so thankful to those families that have been willing to share their story as well as their hopes and dreams for their rare loved ones.
RareKC invites you to share your story. Join other patients and families who have contributed their personal accounts of living with a rare disease. Together we are stronger than RARE!
