Support our rare patients and families to create hope in times of struggle and isolation.
Join other patients and families who have contributed their personal accounts of living with a rare disease. Together we are stronger than RARE!
For media requests including speaking engagements, high-resolution photos and interviews, please contact us.
We bring together all persons impacted by rare diseases and conditions in the Kansas City region and beyond. Please join our mailing list for up-to-date information and event activity.