A RARE Evening with RareKC

September 26, 2024

5:30 PM - 7:30 PM

Loews Kansas City
Event Lawn 7th floor
1515 Wyandotte Street
Kansas City, MO 64108

As part of Global Genes’ RARE Advocacy Summit in Kansas City, RareKC is proud to host this evening event in the heart of our city to mark the advocacy, activism and action of our global rare disease movement. We hope you consider joining RareKC for a special night with over 500 rare disease leaders, healthcare providers, national researchers, and rare disease regional and local organizations.

Suggest Attire — Business Casual

5:30pm -5:50pm
A RareKC Welcome by Kansas City Rare Disease Leaders
Main Ballroom - 6th Floor
  • Kelly Ranallo, RareKC Vice Chair & Founder
  • Tomi Pastinen, MD, PhD; Dee Lyons/Missouri Endowed Chair in Pediatric Genomic Medicine; Director, Center for Pediatric Genomic Medicine/Professor of Pediatrics, University of Missouri-Kansas City School of Medicine; Research Professor of Cancer Biology, University of Kansas School of Medicine
  • Laura Sargent, KC Rare Disease Advocate
  • Dr. Robert White, Dean of Kansas City University College of Biosciences
  • Annie Kennedy, Chief of Policy, EveryLife Foundation

Special Kansas City Rare Disease Champion of Change Award Presentation – by Dr. Steve Leeder, Interim Executive Director, Children’s Mercy Research Institute (CMRI)

6:00pm - 8:00pm
RareKC Welcome Reception & Networking on the KC Skyline
Located on the 7th floor

Featuring RareKC Sponsors & Exhibitors

(Cocktails & Appetizers Served)

Sponsors

Advocate

Children's Mercy

Gold

Silver

Ability KC
Kansas City University
KC Frontiers
Mizzou:NextGen
PacBio
Ultragenyx

Bronze

Amgen
Amicus
BioNexus KC
Every Life
Pharming