Rare Disease Day

March 2, 2026 | 11:30am - 2:00pm

KC Chamber Boardroom

30 W. Pershing Rd. Ste 301, Kansas City, MO

Parking: West Yards Parking Garage at Union Station. Validation will be provided at registration desk.

Powered by BioNexus KC in collaboration with RareKC, this event aims to raise awareness and accelerate progress in the diagnosis, care, and treatment of rare diseases. Join patients, families, caregivers, and advocates as we unite to create change for all people living with a rare disease.

21Days
13Hours
9Mins
12Secs
BioNexus KC

BioNexus KC is a regional convener and catalyst for life sciences innovation in the Kansas City region. Operating at the nexus of human and animal health, BioNexus KC promotes scientific progress and strengthens the impact of research happening in our region. Through collaboration and strategic leadership, BioNexus KC helps accelerate discovery and amplify the Kansas City region’s role as a hub for life sciences innovation.

Rare KC Logo

RareKC drives innovation in the diagnosis, care and treatment of rare diseases by connecting and inspiring our community. RareKC was created to connect the rare community – to empower our voices and inspire innovation throughout the medical and research community – all for the single purpose of rare.

Did you know?

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or more rare diseases affect 25-30 million people in the U.S.