Rare on the Road Part I: Interactive Webinar
Tuesday, June 23, 2020
11:00 a.m. – 1:30 p.m. ET (10:00 a.m. – 12:30 p.m. CT)
Participants will engage in interactive tutorials on how to tell their rare story and how to get involved in advocacy. This event is open to all rare disease community members and will feature special guest speakers, including a rare disease patient and a policy expert.