EveryLife Foundation’s Rare Across America

EveryLife Foundation’s Rare Across America

Make an impact on federal policy from close to your home. Share your rare disease story. Meet other rare disease advocates.

One of our incredible national partners, EveryLife Foundation will be hosting its annual Rare Across America campaign to encourage rare disease advocates to meet with local members of Congress in an effort to enhance resources and policies for rare diseases and conditions.

To register please visit – https://www.votervoice.net/EveryLife/1/Events/5948/Register.

Registration is open until July 3rd.

August 3- September 7, 2020

The local offices of your Members of Congress (meetings will take place either virtually or in-person depending on the office and the state and local rules)

Rare Disease Legislative Advocates (RDLA) staff organizes meetings for rare disease advocates with their Members of Congress and/or the Member’s staff. The meetings take place in the Member’s district office during the month of August, while Congress is in recess from August 3rd to September 7th, 2020. The RDLA team also helps to prepare advocates for their meetings, providing legislative resource materials and hosting pre-meeting training webinars.

No prior advocacy experience is necessary.

Registration for this event and all RDLA events are free for rare disease advocates.

2020 Training Webinars

Rare Across America training webinar will take place on July 9th at 2 pm EST, register here.

Special Social Media training webinar will take place on July 14th at 1:00 pm EST, register here.

Practice Your Pitch with the Fast Forward for RARE Webinar will take place on July 21st at 3:00 pm EST, register here.

For more information – visit the Rare Across America event webpage.

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